Living With and Beyond Cancer MIG (Members’ Interest Group)
(Photo) MIG Secretary Rachael Morgan-Lovatt and MIG Chair/UKONS President Elect Emma Sweeney with UKONS President Richard Henry
Welcome to our Living With And Beyond Cancer Members' Interest Group (LWABC MIG)
Our aim is to facilitate UKONS members in accessing relevant and up to date information regarding services within the field of living with and beyond cancer to support people diagnosed with cancer, their family, friends and carers.
Your MIG officers are UKONS Board Members Emma Sweeney (MIG Chair/UKONS President Elect), Rachael Morgan-Lovatt (MIG Secretary) and Gillian Knight (MIG Officer).
Our objectives are to:
- Develop an up to date document repository of information including links to services for those living with and beyond cancer
- Engage with UKONS members regarding the content of the above and share best practice
- Engage with the relevant activities of the Cancer Nursing Partnership (CNP)
Each quarter we plan to update “the spotlight on” section with one of the many possible consequences of cancer or service providers. Five key prepared questions will be asked of an expert in the area. In addition to sharing information we will provide a literature review and relevant links to support the topic. When appropriate we will also present vignettes from practice.
We will be asking our chosen expert the following five questions:
- Could you tell us why you do what you do?
- Could you sum up your role/charity mission?
- If you could make one change to improve people’s experience of cancer services what would it be?
- Who inspires you?
- What would you say to your younger self starting out?
We will provide links to previous spotlight organisations HERE.
Finally, we look forward to working with you all!
Emma, Rachael & Gillian.
To join the Living With and Beyond Cancer MIG, please click HERE and complete the online form.
Spotlight 4: mynewhair.org
mynewhair is a pioneering charity providing help, advice and support to anyone living with the effects of medical hair loss. mynewhair provides educational training seminars for hair professionals at the L’Oreal academy in London. Seminars have also been held in Glasgow, Dundee, Belfast and Newcastle. On completion of these seminars, hair professionals become part of the charity’s 800-strong salon network across the UK and Ireland – Salons that Care – to provide a wig-cutting and advice service to anyone with medical hair loss. Importantly, these professionals pledge their commitment to the charity’s guiding principles and provides a caring and sensitive service for their clients.
mynewhair has also produced a booklet of advice and information in conjunction with the Department of Health and the Institute of Trichologists. The Patient Information Resource booklet provides advice and support for patients if they lose their hair, advice on choosing a wig, having it styled to suit, as well as information with regards to aftercare/hair re-growth.
Joanne Atkinson and Ann Fox are Trustees of mynewhair, a pioneering charity founded and inspired by professional stylist Trevor Sorbie MBE. The charity, which is celebrating its 10th anniversary, provides advice and support to anyone who has experienced medical hair loss.
Joanne is Head of Continuing Workforce Development at Northumbria University. Ann Fox is Executive Director of Nursing, Quality and Safety at NHS Sunderland CCG.
1. Could you tell us why you do what you do?
We both have a background in cancer nursing but it wasn't until we had personal experiences with friends and family that we realised wig services weren't providing the best product or experience to support the patient through their journey. We then heard about the work Trevor Sorbie was doing and wanted to work with him to improve access to and the quality of wig services.
2. Could you sum up your role/charity mission?
Our role as Trustees of the charity is to ensure we use the funds effectively and efficiently to ensure we deliver mynewhair’s mission and set the strategic direction.
The charity’s mission is also a passionate promise – and that is to make wig customisation and advice and support for people accessible to all medical hair loss sufferers around the UK and long term around the world.
Trevor and the mynewhair team feel his incredible career to date has facilitated this mission...this opportunity to help people. Trevor is grateful to have the skills to pull this off. mynewhair isn’t just about hair - it’s psychological medicine for men and women suffering from hair loss through illness and, for many of Trevor’s clients, it’s the missing link in their treatment. Giving women back their hair – hair that looks natural, attractive and feminine gives them back a little of the confidence to face the world in their darkest hour. It was his personal experience of helping a family member during cancer treatment that inspired the idea of mynewhair.
The charity supports both short term and long term hair loss sufferers. Hair loss can affect men, women and children of all ages. What mynewhair does is give people a chance to feel confident and feel like themselves again.
3. If you could make one change to improve people's experience of cancer services what would it be?
In the context of wig provision - equity of access and quality and parity of provision across the country
4. Who inspires you?
We inspire each other and that keeps us going - but overall that drive comes from the people we have supported whose resilience never ceases to amaze us.
5. What would you say to your younger self starting out?
Be tenacious, be determined and do the right thing even when it's the hardest thing. Laugh and love a lot!